#WeAreNotWaiting: How Patients are Pushing Innovation Forward
Imagine being told you must wait for life-changing healthcare advancements while knowing there are solutions that could help you today. For many with type 1 diabetes, that wait was simply unacceptable. Enter the #WeAreNotWaiting movement—a grassroots initiative fueled by patients and caregivers determined to take control of their health by creating their own solutions.
This movement, born out of frustration with slow regulatory processes and limited options for managing diabetes, embodies the power of citizen science and patient advocacy. At its core, it’s a testament to what happens when people come together to solve problems through creativity, collaboration, and technology.
The Heart of #WeAreNotWaiting
#WeAreNotWaiting started within the diabetes community, particularly among those who rely on continuous glucose monitors (CGMs) and insulin pumps. These devices provide essential data and treatment, but their limitations have long been a source of frustration.
Rather than accept these limitations, patients and caregivers began developing open-source software to connect their devices. This led to innovations like the Open Artificial Pancreas System (OpenAPS), which automates insulin delivery. These tools aren’t just about convenience—they’re saving lives by helping people achieve better glucose control and reducing the risk of complications.
Why Movements Like This Matter
The impact of #WeAreNotWaiting goes far beyond diabetes. It showcases the power of patient-led innovation and challenges the traditional top-down approach in healthcare.
Empowerment through Technology: Movements like this enable patients to play an active role in managing their conditions, often leading to better outcomes.
Filling Gaps in the System: Healthcare systems and regulatory bodies move slowly, but patients living with chronic conditions need solutions now. Citizen science bridges that gap.
Shaping the Future: By developing and sharing their innovations, patients are setting new standards for care and inspiring the healthcare industry to adapt.
What Can We Learn?
#WeAreNotWaiting is a reminder that advocacy and collaboration can drive meaningful change, even in complex industries like healthcare. It’s also a call to action for healthcare professionals, policymakers, and innovators to recognize the value of patient insights and prioritize solutions that meet real-world needs.
Whether you’re living with diabetes, supporting a loved one, or simply inspired by the idea of patient-led change, there’s a role for everyone. Let’s work together to create a future where no one has to wait for the care they deserve.
